🌿 Jeremiah 29:11 — "For I know the plans I have for you," declares the Lord.

Faith · Hope · Rare

Running Alongside
Rare Families

"For I know the plans I have for you…" — Jeremiah 29:11

We walk beside families navigating life with rare disorders — offering community, resources, and the unwavering reminder that no child runs alone.

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A Ministry Born From Love

Run With Liam Rare Ministry, Inc. is a faith-based 501(c)(3) nonprofit dedicated to supporting families whose children live with rare disorders. We believe every rare child is seen, known, and fiercely loved — by God and by this community.


We provide emotional support, practical resources, and spiritual encouragement so no family has to face the journey alone. Whether you're newly diagnosed or years into the marathon, we run with you.

"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future."
Jeremiah 29:11
300M+
People worldwide living with rare diseases
7,000+
Identified rare disorders
72%
Of rare diseases affect children

How We Serve

From emotional support to practical help, our programs are designed around the real needs of rare families.

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Family Support Network

Connecting rare families with peer mentors who truly understand the journey. You are never alone in this race.

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Resource Navigation

Helping families find medical specialists, therapies, financial assistance, and educational accommodations.

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Spiritual Encouragement

Prayer networks, devotionals, and faith-rooted community for families seeking strength beyond their own.

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Awareness Events

Runs, walks, and community events that raise awareness and celebrate the courage of every rare child and their family.

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Caregiver Care

Dedicated support for the parents and caregivers who give everything — because their wellbeing matters too.

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Rare Community

An online community and in-person meetups where families share, grieve, laugh, and grow together.

Why We Run

"We started this ministry because we know what it feels like to receive a rare diagnosis — the fear, the questions, the silence. We wanted to fill that silence with hope."

Run With Liam Rare Ministry was founded in honor of Liam — a child whose rare diagnosis changed his family's world and ignited a passion to help others facing the same uncertain road. Named for the belief that Liam's life carries purpose far beyond his diagnosis, this ministry is a testament that every rare child's story matters.


The tree in our logo represents roots that hold firm through every storm, and branches that reach outward to shelter others. The horseshoe speaks of resilience. The DNA strand, the uniqueness of every rare child. Together, they tell our story: deeply rooted in faith, reaching wide in love.


Connect With Us
Liam wearing a Run With Liam fire helmet, smiling
💜 Meet Liam

About Liam

This is Liam — the brave, joyful, unstoppable boy at the center of everything we do. Living with a rare disorder hasn't slowed Liam down one bit. With his signature smile and boundless spirit, he reminds everyone around him that rare is not a limitation — it's a superpower.


Liam's journey inspired his family to build something bigger than their own story. Every family supported, every awareness event held, and every resource shared is a reflection of the love that Liam pours into the world every single day.


"Liam doesn't just live with a rare disorder — he lives out loud, with courage and grace that inspires everyone who knows him."

Upcoming Events

Jun 14
Run With Liam 5K Awareness Run
📍 Location TBD · 8:00 AM
Register
Jul 19
Rare Family Picnic & Community Day
📍 Community Park · 11:00 AM – 4:00 PM
Learn More
Sep 27
Rare Disease Awareness Night of Hope
📍 Venue TBD · 6:00 PM
RSVP
Nov 08
Annual Fundraising Gala
📍 Venue TBD · 7:00 PM
Tickets

Ways to Support Rare Families

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Donate

Your gift directly funds family support programs, events, and resources for rare families in need.

Give Today →
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Volunteer

Join our team of passionate volunteers who show up for rare families in big and small ways.

Get Involved →
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Sponsor

Partner with us as a business or organization to amplify rare awareness in your community.

Become a Sponsor →
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Spread the Word

Share our mission on social media and help more rare families find the community they need.

Share Our Story →

Let's Connect

Whether you're a rare family seeking support, a volunteer ready to serve, or a partner wanting to make a difference — we'd love to hear from you.

info@runwithliam.org
📱 Follow us @RunWithLiam
🙏 Run With Liam Rare Ministry, Inc.

Run With Liam Rare Ministry, Inc. is a 501(c)(3) nonprofit organization. All donations are tax-deductible to the extent provided by law.